Sunday, September 14, 2014

Hydrocephalus Walk!!

Yesterday we participated in the hydrocephalus walk. We had some family walk with us which was awesome. It feels good to know that Amelia has support. We had tons of people donate to HA for the walk. Those that wanted to show support for Amelia but couldn't be there wore blue in her honor yesterday. 

 The Nashville walk brought in over $20,000. This money is important for research purposes. People with hydro have many brain surgeries through their lives. With the money raised the HA is involved in trying to find a cure for hydro. Right now they are working on how treatment can be less invasive. How they can find out if shunts are working with less radiation. It's amazing to see the progress HA has made in the past few years. Hydrocephalus used to be a condition that mothers were told to abort over. Now with more awareness people can see that hydro isn't a death sentence. There is no cure for hydrocephalus but there is treatment. Brain surgery sucks, but it beats the alternative. We are hoping to see many more advances in the years to come. 

Thank you to everyone who has prayed, donated, wore blue, walked, and loved us during this. Know that Amelia is not fighting this condition alone, there are millions living with this condition. So you aren't just supporting Amelia, you are supporting all of them! 

No comments:

Post a Comment