Nov 29

Today was another big day for Amelia. She got her EEG off as she didn't have any more seizure!!! As they were taking it off the speech pathologist came by. She would be back in a little bit. That would determine if she can take a bottle on her own. Also during rounds the doctors said that Amelia was well enough to leave the PCCU! That would be one step closer to getting out of here!

The speech pathologist was quick coming back. She checked to see if Amelia could suck and she was impressed. This little girl had some strength. She got a bottle and started to feed her a little. Once she knew Amelia was swallowing and not just holding it in her mouth she gave the bottle to me. 8 days it took for me to feed my baby girl! She did amazing!!! They didn't want it give her too much because she would get an upset belly so I fed her an ounce. She was so happy after that. She still had the feeding tube and the attending would decide if she needed to keep it or not. The speech pathologist was okay with it being pulled.

One of the best things I got to see was Matt holding Amelia. Every time he holds her it just melts my heart. We have been married for over 12 years and I know so much about him. We don't have secrets from each other and tell each other everything. Okay, so maybe I share a little more with him (that he wishes I wouldn't lol). The one thing I never knew and am now learning is what an awesome daddy he is. He has been reading to her multiple times a day. He sings to her. He plays with her. He talks to her. But most importantly he prays with her. He is just beyond amazing.

They decided to go ahead and pull her feeding tube! She was so happy. That meant nothing was left on her face. She still had her pic line and she had her monitoring sensors on but I could kiss all over that sweet face!! She is just so beautiful. 

The physical and occupational therapist came in and saw Amelia. They said she was too stiff and they would come back and teach us some exercises to do with her. She was moving around like crazy so we didn't know why they said that but waited for them to come back. She came back and started to show us what to do with her and she was shocked said it was like night and day with her. Amelia was being a little snot earlier and wouldn't cooperate. Now she was fine! We still need to do the exercises but that's okay, just more time with her! 

By the end of the day we still weren't moved. They didn't have a room upstairs so we would have to wait till at least tomorrow. One more night with some awesome nurses, we could handle that!!