Eye surgery

Back on June 27th Amelia had surgery to correct her amblyopia. He went in and tightened the muscle on the left side of her eye and loosened the right side so that her eye would be straighter. With her hydrocephalus her eye will most likely start to turn out so he didn't want to move the eye exactly center so that we can possibly avoid another surgery in a few years. 

Amelia, of course, did amazing. There was a very tiny amount of swelling for a day and some redness but that's it. Her eye did itch (they say it feels like she had sand in her eye because she had 4 stitches on her eyeball) and that was the hardest part, stopping the itching. 

I'm so proud of Amelia. This little girl has been through so much and each obstacle she is thrown she takes it like a champ. I wish I had half her strength. She keeps me grounded and focused on what's important in life. 

Super boots (casting) and a baby

Sorry for the lack of updating. It's been a long few months. In January Amelia had her feet/ankles casted for 5 weeks. It was supposed to be a little longer but over achiever decided she wanted to show off and made great improvements and got out of them early. Her feet are now closer to being flat and that means she is closer to standing on them solo. Now we are working on her hamstrings. They are really tight. She has to wear knee Immobilizers to help stretch them. That isn't working out the best so this is a slow process. 

Amelia has been a champ through it all though. She actually liked the casting and called them her super boots! Her therapist thought it was so funny because no kids actually like being casted and Amelia got excited about it. 

We still don't have a compression suit as they've screwed it up. It's so frustrating. I just wish we had everything we needed all together so that maybe just maybe we could see if standing/walking would ever happen. It is so frustrating and nerve wrecking to not know and have my emotions on a rollercoaster. 

One reason I've been MIA is because just about 2 weeks ago Amelia became a big sister! She has a baby sister Charlotte and just loves her to pieces. The end of the pregnancy was rough on me and so poor Amelia had to deal with the consequences of it. Now she's still dealing as I had a c section and can't do much with her, and I just got out of the hospital because I developed postpartum pre eclampsia. Talk about a horrible experience. 

But we are all home now and trying to develop a routine. I still can't do much therapy with Amelia because I can't lift her, but I'm trying to do the best I can with both girls.